HDLS

Hereditary Diffuse Leukoencephalopathy with Spheroids (HDLS)

My wife Lisa Jane has this condition. She ran her 10th marathon in 2013, she was diagnosed in 2015, and it has bee a slow decline ever since. In 2019 she can no longer talk, nor walk. I will post info here as I have time. –Mike Prestwood

Do you have HDLS?

Or, another rare hereditary leukoencephalopathy?

Contact Me

Feel free to share with me your story. What you’ve tried. What stage you are at. Anything!

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