Lisa has Hereditary Diffuse Leukoencephalopathy with Spheroids (HDLS).
In 2013, Lisa ran her 10th and last marathon, the Napa marathon. She ran the first half with her dad who, at 80 years old, had to drop out from a foot injury.
Lisa has trouble speaking
Full Diagnosis History
Lisa’s Full Diagnosis (password protected) — a full version of this page with notes broken down by year to help me track progression, identify symptoms, and to document symptom treatments including medications and their “perceived” effect.