Hereditary Diffuse Leukoencephalopathy with Spheroids
My wife Lisa Jane has this condition. She ran her 10th marathon in 2013, she was diagnosed in 2015, and it has bee a slow decline ever since. In 2019 she can no longer talk, nor walk. I will post info here as I have time. –Mike Prestwood
Do you have
Or, another rare hereditary leukoencephalopathy?
Feel free to share with me your story. What you’ve tried. What stage you are at. Anything!